That is not all in my washing day blues though, and I don't know if anyone will fully understand the way I feel about it....
Have you ever done a load of washing and it doesn't all come out clean, yes you have, I know you have...but have you ever had the problem of gastric juices being left behind on the clothing and it not wanting to wash out???Oh my, ever since NiQi had her PEG inserted, it has leaked out small amounts of gastric juices which quite obviously land up on both her bed sheets and her clothing, more notably, her tops.
It annoys her no end that she has to wear more than one top at a time, and even wearing a wound dressing does not prevent the gastric juices staining what she is wearing and where she is sleeping. She has loads of tops and is always buying new ones and I wish I knew what I could use to get rid of these marks. I have tried scrubbing at them, but the stains remain....sigh.
It is almost as bad, but not quite, as fighting the oily stools that Mark deposited in his toweling nappies all those years ago - before he was diagnosed with Cystic Fibrosis. We had no idea at the time that fatty, oily stools was a sign of CF, in fact we didn't even know about it in those days. Having had Matthew before Mark was born, made me realize that things were different, but no idea what it was. I had a real battle to wash his nappies and ended up soaking them more than once in the nappy solution. Before washing, I used to scrub at them too, trying not only to get rid of the oil, but also the stains. It's probably a good thing that we used toweling nappies in those days as we were able to see and feel...if we had used disposables, we would have been none the wiser.
So CF comes with different worries and other battles as our children grow older and have new treatments to help keep them healthy. Next time you put a load of washing in the machine, just reflect on how lucky you may be to not have to re-wash it, or even worry about it finishing the wash, and still coming out dirty.
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