Larkwood Life: Update After Clinic

So we went to clinic on the 5th and NiQi blogged about that so I thought there was no need for me to do one too, but here is an update post clinic.

Ummmmmmmmm..........

Contrary to what she thought and remembered after her treatment and release at the end of March, she both lost weight and her lung function was down. The weight loss is mainly due to her not having her night feeds, and to date the machine she was using has still not been replaced. It has been more than a month now and the kilos are starting to fall at a rapid rate. The days she has been in to the shop haven't helped either, for if she stays past lunch time she doesn't eat until she comes home which makes her feel full at supper time, meaning she eats less...sigh. It is a real problem and she has to approach it head on. She needs to eat throughout the day, which is difficult when serving customers and working with staff that don't always eat between breakfast and supper....anyway she is working on a solution, one of which is to rather be given things to do at home, where she can peck at food all through the day. It sounds like she doesn't eat, but she does - and often - but definitely not enough to replace the energy she expends. I can see that clothes that have been packed away in suitcases because they were too small are now making an appearance again and belts are being worn to keep things up. At clinic she was down two kilos...now it is more...not sure yet how much as she is too scared to get on the scale.

Her lung function, which she thought had remained constant, was actually down from 33% to 31%. The coughing has increased both through the night and during the day with higher production levels of mucus in her lungs. Thick, sticky, green stuff is making itself at home in her lungs, making her more tired and generally lethargic. Look at her breathing when you talk to her and hear the crackles as she breathes and you will know that she is battling a bit at the moment...BUT...asks her how she is feeling and all smiles, she will tell you she is good, nodding her head as she says it, not convincing herself, but convincing you...

Other than that, she is happy...with a boyfriend, friends, family and two new little kittens who arrived with dad on Thursday when he came home from work...they are her newest delight and subjects for her photography - already spoiled rotten with new feeding bowls, toys and a scratching post.

What more can she ask for than anything that keeps her happy....